Follow-up protocol of patients with cystic fibrosis diagnosed by newborn screening

Special Article

Protocolo de seguimiento de pacientes con fibrosis quística diagnosticados por cribado neonatal

Silvia Gartnera,

Corresponding author

sgartner@vhebron.net

Corresponding author.

, Pedro Mondéjar-Lópezb, Óscar Asensio de la Cruzc, Cystic Fibrosis Working Group of the Spanish Society of Pediatric Pulmonology 1

a Unidad de Fibrosis Quística y Neumología Pediátrica, Hospital Universitari Vall d’Hebron, Barcelona, Spain

b Unidad de Neumología Pediátrica y Fibrosis Quística, Hospital Clínico Universitario Virgen de la Arrixaca, Murcia, Spain

c Unidad de Fibrosis Quística y Neumología y Alergia Pediátrica, Hospital de Sabadell, Parc Taulí Hospital Universitario, Barcelona, Spain

Appendix A. List of authors of the Working Group on Cystic Fibrosis of the Sociedad de Neumología Pediátrica (Spanish Sociology of Paediatric Pulmonology)

María José Alonsoaa, Marina Álvarezab, Anselmo Andrés Martínac, María Isabel Barrio Gómez de Agüeroad, María Jesús Cabero Pérezae, Pilar Caro Aguileraaf, María Cols Roigag, Isidoro Cortell Aznar-Pérezah, Jordi Costa Colomerag, Isabel Delgado Pecellínai, Amparo Escribano Montaneraj, Joan Figuerola Muletak, Gloria García Hernándezal, Pilar Guayarteam, David Gil Ortegaan, David Gómez Pastranaao, Adelaida Lamas Ferreiroap, José Luis Marín Soriaaq, Carlos Martín de Vicentear, Martín Navarro Merinoac..., Concepción Oliva Hernándezas, Javier Pérez Fríasaf, Estela Pérez Ruizaf, Sandra Rovira Amigoat, Antonio Salcedo Posadasau, Manuel Sánchez-Solísav, Josep Sirvent Gómezaw, Carlos Vázquez Corderoax, José Ramón Villa AsensiayVer más

aa Instituto de Biología y Genética Molecular (IBGM), Universidad de Valladolid, Valladolid

ab Paediatric Gastroenterology, Hepatology and Nutritional Support Unit, Hospital Universitari Vall d’Hebron, Barcelona

ac Department of Paediatric Pulmonology, Department and Clinical Management Unit of Paediatrics, Hospital Universitario Virgen Macarena, Seville

ad Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Universitario La Paz, Madrid

ae Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Marqués de Valdecilla, Santander

af Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Materno-Infantil Universitario de Málaga, Malaga

ag Paediatric Pulmonology and Cystic Fibrosis Unit, Department of Paediatrics, Hospital Sant Joan de Déu, Barcelona

ah Department of Paediatric Allergy and Pulmonology, Hospital Universitario La Fe, Valencia

ai Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Universitario Virgen del Rocío, Seville

aj Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Clínico Universitario de Valencia, Universitat de València, Valencia

ak Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Universitario Son Espases, Palma de Mallorca

al Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Universitario 12 de Octubre, Madrid

am Paediatric Gastroenterology Unit, Hospital Universitario Parc Taulí, Sabadell

an Paediatric Gastroenterology, Hepatology and Nutrition Unit, Hospital Universitario Virgen de la Arrixaca, Murcia

ao Paediatric Pulmonology Unit, Hospital de Jerez, Jerez de la Frontera

ap Cystic Fibrosis Unit, Hospital Universitario Ramón y Cajal, Instituto Ramón y Cajal de Investigación Sanitaria (IRYCIS), Madrid

aq Neonatal Screening Laboratory of Catalonia, Hospital Clinic, Barcelona

ar Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Universitario Miguel Servet, Zaragoza

as Hospital Universitario Nuestra Señora de la Candelaria, Santa Cruz de Tenerife

at Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Vall d’Hebron, Barcelona

au Cystic Fibrosis Unit, Hospital Universitario del Niño Jesús-Hospital Universitario Gregorio Marañón, Madrid

av Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Universitario Virgen de la Arrixaca, Murcia

aw Paediatric Pulmonology Unit, Hospital Materno Infantil, Complexo Hospitalario Universitario A Coruña, A Coruña

ax Paediatric Pulmonology and Cystic Fibrosis Unit, Hospital Universitario Cruces, Bilbao

ay Pulmonology and Cystic Fibrosis Unit, Hospital Universitario del Niño Jesús, Madrid

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ISSN: 23412879
Original language: English

DOI:10.1016/j.anpede.2018.11.010

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