ORIGINAL
Actitudes éticas de los pediatras de Cuidados Intensivos ante pacientes con atrofia muscular espinal tipo 1
Ethical attitudes of intensive care paediatricians as regards patients with spinal muscular atrophy type 1
María Carmen Agra Tuñasa,
, Ramón Hernández Rastrollob,c, Arturo Hernández Gonzálezb,d, Carmen Ramil Fragab,e, Francisco José Cambra Lasaosab,f, Sebastián Quintero Oterob,d, Angela Ruiz Extremerab,g, Antonio Rodríguez Núñeza,b,h
a Área de Pediatría, Servicio de Críticos, Intermedios y Urgencias Pediátricas, Hospital Clínico Universitario de Santiago de Compostela, Grupo de Investigación CLINURSID, Departamento de Enfermería, Universidade de Santiago de Compostela, Santiago de Compostela, España
b Grupo de Trabajo de Ética, Sociedad Española de Cuidados Intensivos Pediátricos (SECIP), Madrid, España
c Servicio de Pediatría, Unidad de Cuidados Intensivos Pediátricos, Complejo Hospitalario Universitario de Badajoz, Badajoz, España
d Servicio de Pediatría, Hospital Puerta del Mar, Cádiz, España
e Unidad de Cuidados Intensivos Pediátricos, Complejo Hospitalario Universitario de La Coruña, A Coruña, España
f Unidad de Cuidados Intensivos Pediátricos, Hospital Sant Joan de Déu, Barcelona, España
g Departamento de Pediatría, Complejo Hospitalario Universitario de Granada, Ibs Granada, Ciberehd, Granada, España
h Instituto de Investigación de Santiago (IDIS), Red de Salud Materno infantil (SAMID II), Madrid, España
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