ORIGINAL
Necesidades sanitarias y socioeducativas de niños con enfermedades raras de tipo metabólico y sus familias: estudio cualitativo en un hospital de tercer nivel
Health and socio-educational needs of the families and children with rare metabolic diseases: Qualitative study in a tertiary hospital
Eva María Tejada-Ortigosaa, Katherine Flores-Rojasb, Laura Moreno-Quintanaa, María Carmen Muñoz-Villanuevac, Juan Luis Pérez-Naveroa, Mercedes Gil-Camposb,
a Servicio de Pediatría, Hospital Universitario Reina Sofía, Universidad de Córdoba, Instituto Maimónides de Investigación Biomédica de Córdoba (IMIBIC), Córdoba, España
b Unidad de Metabolismo Infantil, Hospital Universitario Reina Sofía, Universidad de Córdoba, Instituto Maimónides de Investigación Biomédica de Córdoba (IMIBIC), Centro de Investigación Biomédica en Red de Fisiopatología de la Obesidad y Nutrición (CIBERObn), Córdoba, España
c Unidad de Metodología de la Investigación, Instituto Maimónides de Investigación Biomédica de Córdoba (IMIBIC), Córdoba, España
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